Monday, February 23, 2009

February 23rd - Day +17

Ryan,

We watched the Oscars last night together and I think I fell asleep before you did..
You were loving watching Walle and the Kung Fu Panda clips as well as the dancing....
I did not hear you in the night, not once....Krista your nurse told me you did not wake and that she changed you twice in the night, something I usually do..I was so tired.

When we woke this morning, we woke to Julie, one of you favorite nurses telling us your white count was at o.3.....it is moving up you are doing so well.

As today is Monday, all the team on Unit 8B get together to discuss all the children on the ward and then the Dr.s come in and visit with us and let us know what is going on.

Dr. Mira came in and had her thumbs up, saying you are doing amazing and she is so proud of you. If your counts tomorrow are the same or higher they will take you off of your antibiotics, as they absorb into the liver and kidneys making them work a bit harder.

You continue not to want to eat anything, but this is common as chemo can affect the way things taste...and I have been told that you may like things you did not before and may dislike things you really liked before.. usually it is the stronger tasting things that children like after transplant..

We are going to have some issues when we get home as you love Strawberries, blueberries and blackberries. and they have all been listed as things you can not have...as they are harder to wash and are sprayed with chemicals....but we will come up with some new things that you like..

I have asked our social worker to register you with childrens wish foundation, so they are in the process of doing that for you.. hopefully once we have the all clear we can go away (the five of us) once you are better and your immune system is stronger..(we will play this by ear)

Counts today:

WBC - 0.3
RBC- 81
PLT - 30

Hopefully you will be engrafted sometime next week and then it will be a matter of getting you eating and drinking enough that they feel confident you will not get dehydrated. If you can do this we may get a few day passes home from about 2pm- 9pm and then back to sleep and hydration and then discharge....this will all depend on how you are doing and as long as no complications arise....

Ryan we are getting there....

Mommy.

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