Today's blog is a little late....Just got back to the hospital. Had planned to come back tomorrow, but could not say away another night...Dave has left to go home and get some uninterupted sleep.
Ryan had another bad night last night. Alot of pain in his throat and tummy. His morphine has been increased by 20%. He is not talking and spitting up his mucus every few minutes...Poor little guy, but still he is not complaining. I just finished giving him a bath.
Overall he looks well to me....His eyes are a bit red, probably from lack of a full night's sleep and the drugs..
Counts today:
WBC - > 0.1
RBC 85
PLT -42
Before Dave left, I went downstairs to get something to eat...I ran into a lady and her daughter that we had met when we first got diagnosed back in November...This little girl taught Ryan how to ride his pole....much easier way to get around..I could not help but cry when she asked me how Ryan was and then told me that her daughter was cancer free for 2 month and she has relapsed and the cancer is back.. She said they were looking to get there life back in order, travel this summer etc. I pray that Megan gets better soon.
Many of the children that went to transplant a week before Ryan are going into step down and will soon be going home...This is also hard as you develop relationships with the parents as we are all going through the same thing and are hoping for the very best and we all try to stay so positive..
Well going to spend sometime with Ryan now...Will write again tomorrow.
Have a good night everyone...
Subscribe to:
Post Comments (Atom)
Sue,I just get a sense that you are feeling a little down from this blog. Please, keep your chin up, your doing brilliantly well. Hopefully this is the worst it will get for Ryan and he will start to pick up soon. Hope you are feeling a little better and got SOME sleep over the weekend.
ReplyDeleteXXXX
Brenda