Ryan,
You were able to get down 75 ml of apple juice yesterday and 40 ml of ginger ale...You took a bite of a grape popsicle....good for you. I think it was a bit early to take in so much, because just after you finished the ginger ale you spat it all up....that is ok.....
You slept well last night ( 8 pm - 8 am ) with a small interuption saying you wanted to be sick....and it was a very small amount and you were back out in minutes...
Today, you have been grumpy and daddy came to visit and you were not very nice to him.
Daddy has left at your request and will be back later for the weekend.. Poor Daddy!!!!
Your counts today:
WBC - 0.1 - maybe on the rise....but could fall back down again tomorrow....crossing my fingers
RBC -78
PLT - 22
You have had your benadryl and your transfusion and you are still awake....I amazed as you usually fall back to sleep....
We have played Lego this morning, and built a house and a car...
Mira was in today already and said that your liver counts are up again, but that you are getting ride of all the fluid that they are pumping you with. So that is a good thing.
They still do not think that you have the aveno oculsive disease because you are not retaining any fluid you are actually in teh negatives..She also said that your poop has changed color and could be a sign of graft VS host....she said it is a bit early as the counts have not come up yet ...but they will keep an eye on it all...
You are smiling alot more this afternoon at your TV shows....which I am thrilled about ..your smile is so great and you are talking so much more ....
You are being a mommy's boy today, you want only me to be in the room, you have told all the nurses to leave and the Dr's not to talk to me ....
Ryan you said you would try to drink again for me today and you have kept down about 50 ml of apple juice so far today aswell....so I am pleased....as this will help us to go home faster as long as everything else stay in check ...
They are going to reduce you amount of Morphine as well as I do not think you need the higher dose...so we are taking you from 1.59 to 1.29......so another good thing.....
You really are amazing and I could not be any prouder of you, you have dealt with all of this so well, and have not really complained one bit...OK, maybe one bit, but not much more...and to be stuck in a room like you have been and still being so good...I love you.....
Mommy
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Hi Sue & Ryan,
ReplyDeleteAlways good news to hear Ryan is doing better today.
I think the two of you being in such a confined area have done amazing due to the circumstances.
As always my prayers are with you that Ryan's counts start to climb in the very near future.
Hope you are having a good day!
Lots of love,
Tina
xo
Hey Ryan: Awesome news that you are drinking, eating popsicles and SMILING. It must feel so good to know that you are making your mom and dad happy and so proud of their brave little man. Soon you will be outside with all of your friends, playing in the sun and fresh air. Your sisters must miss you terribly. I'm sure you miss them and everyone else too! In the years to come you will look back and be in awe of your mom and dad in how they looked after their precious son through your detour.
ReplyDeleteHugs and kisses
Elaine