I just want to thank Erin and Alex for coming to visit Ryan yesterday, as well as Nicole, Shayne , Ethan and Aidan, it really occupied alot of his time. Erin he had a bath last night with his Dino's.
Dave had updated me through the weekend that Ryan had stopped eating and they were considering putting him on a suppliment...
When Kayla and I got here last night, he was so happy to see us, so we hung out in the hall for a while and Ryan and Kayla played for a bit. Kayla gave him her sweater and he had it around his shoulders. Kayla he misses you so much, he watched you and Daddy leave from the window and saw that you took the stairs and daddy took the elevator and he said Kayla daddy won, the elevator was faster...I laguhed..He also said I don't want Kayla to go mommy....
He ate a few pieces of spagetti noodles for me last night and sipped on some milk....at this point whatever he asks for he gets (nurses said that will stop on Friday) strick diet....low bacteria....
He takes his medicine - Septra to prevent chest infections / and Dilantin to prevent seizures by him self...we play a bit of a game.I leave the room and he has to have it gone by the time I get back....so I walk outside and watch him and then I come back and he is so proud of himself...
His is addicted to his Nintendo DS ( Super Mario), he concentrates so much and get frustrated when he loses a man
So we are done with the 16 doses of Busulfan and the dilantin will stop later tomorrow.
We start the second form of Chemo tomorrow (stronger than the first) it is called Cyclophosphamide (this will be given on Monday and Tuesday) it will be given by IV and run over an hour....Side effect usually will start with in a day or two.
They will also give a drug to prevent his bladder from bleeding as this medicine can attach to the wall of the bladder and sometime they see some bleeding...(they said it usually happens in the older kids, as they tend to hold there pee, where as the youngers ones cant hold so hopefully this does not happen to Ryan
Counts today are :
WBC - 5.4
RBC - 96
PLT - 40 and holding
We saw some broken blood vessles under his eyes and one on his leg so we informed the nurse and they ran an CBC just to ensure the platelets were still holding (test was done at 8:45pm)
results:
WBC- 4.8
RBC - 96
PLT - 43 (so still holding) do not have to worry during the night....yeah
Will post again tomorrow.
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Thanks for keeping us informed about Ryan progress. I can sure you that daily other Pt mothers asked me about your son and we are praying for his bests soon.
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