Monday, March 9, 2009

March 9th - Day + 31

Ryan,

You had a good day yesterday, with the exception of taking your medication.
I don't blame you as they taste horrible. It is aweful to watch you struggle with this.

We walked the halls and played with your toys.
Your sister Kayla came down for lunch and you had such a nice visit.
Gramma and Grandad came later in the afternoon on there way back to Montreal, and you made a wood boat with Grandad which we painted last night and you decided to call your boat, Pika Grandad.. (I am sure your grandad would be proud to be part of the pokemons)

Auntie Nicole, Uncle Shayne and the boys were going to come, but Ethan and Aidan were just getting over there coughs so did not want to give you any germs.

Your counts yesterday were

WBC- 2.3
RBC -88
PLT -88
Poly's 1.0

You have woken up this morning and taken your medication a little bit better, but still with some tears. We have taken a walk downstairs and your feet and legs are now in need of a rest.

One of the nurses just came in and told us we will probably go home on Wednesday. I have questioned this as we were told probably today. They say you are ready but I guess there is a lot more to do then just letting us leave. You are in need of over night hydration, so you have to get hooked up to IV at night at home, so a nurse will have to come and visit us each day.

So we will wait to see what the verdict is on your discharge.

Your counts today :

WBC- 1.7
RBC- 101
PLT - 88
Poly's - .56

Daddy has dropped Ally off and is off to work for the day, I am sure he will be in to visit you at some point today.

So now it is just a waiting game to see when we can go home and resume a some what of a normal life.

Ryan you have done an amazing job.
I want to thank your sister Ally for giving you a chance of beating this disease.
Ally you are an angel that was sent from god to help your brother. Daddy and mommy are so very proud of you. When you are older, you will understand what an amazing thing you have done.
I want to thank your Auntie Nicole and Uncle Shayne for taking Ally in to your home for the last 4 months on and off in order to help us out. And for organizing the blood drive in Milton.
Your Grandma and Grandad for coming every second weekend to help us out at the house and getting it ready for you to come home.
Your daddy's family for keeping in touch and sending support our way every day and for the visits we received just before Christmas and during Christmas.
The Thomas and Dos Santos family for all there support.
Kayla's mommy's family for all there support.
Tina and her entire family for everything they have done for our family.
All of our neighbours and friends for everything they have done.
Sylvie, Bill, Karen, Jeff and there family for all of there support.
Craig for his help with the webiste and keeping it updated.
Maggie, Trish, Shirly and there families for putting together a blood drive in Montreal.
The Hospital for sick Kids ( doctors, nurses and staff ) they have made our stay here as enjoyable as it can possibly be. Ryan acutally probably would not mind staying. There is way more to do here than at home.

Really mommy just wants to thank everyone for all the support we have received during this very difficult time.

Ryan,

You are looking good, and mommy and daddy send you all the positive vibes that you need to continue to do well and fight this disease. We will, as a family take it one day at a time, we will celebrate every success and we will fight every hurdle that comes our way.
Together we can do this and one day we will look back on this as a bump in the road.

We all love you,

Mommy.

2 comments:

  1. Hey Ryan: You have come an awfully long way and for a three year old at that!! You are very special. Let's hope that the worst part is now behind you and you can on with being the wonderful cheerful playful humorous boy we all love. It must have been so much fun walking down the halls, going downstairs and having visitors again!!

    We can't wait to visit with you once you get home and settled!!

    Tony & Elaine

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  2. Dear Highland Family,

    You are an inspiration to us all! You've met one of life's greatest tribulations with such grace and fortitude.

    May only good news be in your future.

    Love, Amy's mom

    ReplyDelete