March 18th -Day + 40

Ryan,

So we are just getting home from the hospital. Your first visit post transplant.
You needed your lines accessed for them to do your routine blood work. You were happy to help. We sat with the Dr. and asked if the fish test ( your sisters cells vs your cells ) were in and we were told no.
Daddy asked if they could call for the results as we were told it would only take 4-5 days to get the answers. (Daddy was very anxious.) The Dr. said that she would call and see if they were in and just not put into the computer.
We waited about 40 mintues and we were told that your routine blood work looked off. Daddy, again asked if she had called for the fish test and she looked at us and said we will take about this later with Dr. Gassass. I am not sure if it was how she said it or the look on her face, but Daddy and I both new that it was not great news.
The re-did you routine blood work and we waited another 40 minutes.

Dr. Gassass then came in and said the first test this morning must have been a bad sample as your Red count was very low and did not make much sense.

your counts today were;

WBC- 6.1
RBC- 89
PLT - 164
Poly's - 2.89

Dr. Gassass said this is all good. He then went on to say that he need to let us know that the fish test came back as 197 cells as Ally's and 3 cells were Ryans.
When they do the test they take 200 cells and check to see what the ratio is.
This works out to 1.5% of the cell are your and 98.5% are All'y'.
Daddy and I were hoping that you had 10% Ally's cells, but this is not the case sweetheart. We know have a new bump in our road and your journey. We now have to decrease one medication (cyclosporine) to see if Ally's cells can destroy the remainder of your cells. The fact that you still have some of your own cells put you at greater risk of relapsing.
You will be monitored every week as usual and then we will do the fish test every second week to see what your cells are doing.
Should this not work ( decreasing the medicine) our next step will be to look at Ally again.
Dr. Gassass called it a DLI. DLI means that they would inject Ally with a drug and increase her white cells and then harvest them and infuse them into you. This would mean that Ally would have to be put under again and her hospital stay this time would be 3-4 days. Dr. Gassass has told us not to panic yet.

Mommy has had her tears today and is now thinking positive as that is the only thing I can do.
You are everything to us, and to know that the transplant was not 100% successful is hard to swallow. We wish this journey for you was over and you could get back to your normal life.
It seems as if this journey will be a little longer than we thought honey.
Ryan remember, things in life are not always easy, sometimes there are bumps in the road and then the good things come to those who wait.
Ryan, you just told me " Mommy don't worry I will be fine"
We love you so much

Mommy.