Ryan,
It is wednesday and we set off for the hospital early. You were in great spirits.
We saw your friend Kathryn and her brother Jeff.
We started off by seeing Dr. Gassas and you invited him to your birthday. He was very honored.
But he will have to pass as he need to ensure that he is at the hospital to take care of all the other boy and girls.
But good news your Nana, Auntie Brenda, Uncle Jim, Auntie Ro Ro and Uncle Phillip will be coming over from Ireland to see you in May for you Birthday. You may even get a visit from your Uncle Aidan and Auntie Ann.
Dr. Gassas examed you today and he still can not feel your spleen so that is great news.
He has removed your overnight hydration another good thing as we are eating and drinking well.
Your routine blood work has come back and looks pretty good. The only down side is that your monocytes ( marker for your disease ) has increased a bit. This is not something we want. It has come out of the normal range from last week and we will monitor. We await the FISH test again.
Ryan, it really seems like this is a week by week process and it is alot of adjusting to see what happens next. It is not at all straight forward. Dr. Gassas, I think should have the results by the end of the week and will let us know.
If your cells increase, they will make the decission to do the DLI on Ally, if they remain the same or less then we will wait some more. Your white counts, platelets and red counts are all stable..
Mommy is trying to hold it all together, but with great difficulty. I actually just made two cups of tea, and I am the only one here. Cleary not thinking.
Keep fighting my sweet boy. You are doing great..
We are all beside you every step of the way .
Love Mommy.
Subscribe to:
Post Comments (Atom)
Hey Ryan:
ReplyDeleteWow, that is going to some some birthday party! I'll bet Dr. Gassas will regret not being there. Can we come?
Your mom & dad must be so happy that you have had your overnight hydration removed - one more step forward. I'm sure there is more good news on the horizon.
Enjoy the rest of your day and give your mom and dad big hugs from me.
Elaine
Keep brave little mother. It sounds like a long and hard process and it must be very difficult for you to stay positive day after day. We are all behind you and will support your family in any way possible. I pray for your strength and Ryans' complete recovery.
ReplyDeleteThanks for keeping us updated. Everything will be fine.
It sounds like this is going to be a longer road than first thought. Just keep on it. And remember, sometimes slow and steady wins the race!!!
ReplyDeleteAlthough we never met face to face, I feel like I know you and more so, Ryan through this blog. I'm a Mom here in Milton with a 4 1/2 year old and I can't even begin to imagine how you feel. As I Mom I can only relate to the love you feel for your children. Your strength is admirable. I log on, especially on Wednesdays with fingers crossed, hoping for the best. I smile for Ryan and shed tears too.
ReplyDeleteI wish you love and Ryan forever.
I will use Miklo´s words to say what i feel too, altought we never met face to face, i feel like part of your family. I wait for wednesdays to read news about Ryan and i am happy when you are and i am sad when you are sad too. You are a brave women and a MUM with all the letters. Some people in Portugal knows about Ryans´s case and we are positive and praying every day. The road could be long, but the end will be a ahappy one.
ReplyDeleteKisses
Paula
We were all there with you to drink that 2nd cup of tea. Please take the time to recharge, for you and for Ryan.
ReplyDeleteThe road is long and scary, but each mile is made up of so much love for your family.
That birthday party sounds like it will be a great one.