April 15th- Day+ 68

Ryan,

You would have been so proud of your little sister. When we got to the hospital she had her blood work and IV done. She cried a little but she got through it. We waited until about 3pm and the OR called us down. We were what they call " on call " as it was booked last minute.

When we got down stairs they came and told us that they were running late and if we wanted this done that Ally would have to be sidated and not put under general.

This is when we lost it, Mommy broke down and Daddy was just angry. We were not told this and with our emmotions running high, Daddy laid into the nurse and the Dr. The wanted to give her 3 different drugs, one that causes short term memory loss, and another on top of that.
When it came down to it we allowed them to do it, otherwise they were sending up back up stairs and it would have been cancelled. Mommy asked that she went in with Ally to the OR to make sure that she would be ok. When they gave her the first drug, we could not help but laugh as she was so high and she was laughing so hard..Daddy took a video so he could show Gramma and Grandad. She got through the surgery just fine and was awake when she came out.

The line was in her leg and she was not allowed to sit or walk. Ryan this was the hardest part as she is so much younger than you and does not understand. She had a reaction to all the drugs about an hour post surgery and daddy could hardly hold her down. She became a very angry child and she then fell asleep. It started again about 6:30 and the nurse gave her Ativan to calm her down.

We got up yesterday and went down to the 6th floor where they did the stem stell harvest and then we have to wait to see if they got enough or she had to do it again.

At 5:15 Dr. Gassas came in and told us she had done her job and it was now up to you to except her cells to fight off yours. Dr. Gassas was hoping for 2 sets to do two DLI's and Ally provided enough for 3.

She is home and resting well. We have to monitor heg leg today to make sure there is no bleeding. You were so happy to see her last night. But were quick to ask me to put her to bed. I think you wanted time with me and I was ready for it to. I missed you so much.

We are heading back to the hospital this morning. Dr. Gassas wants to do a Bone Marrow Aspiration on you to see if your JMML is back. He says it sometime hides it self in the bone marrow and not the perifial blood. So that will be done at around 11 and they will knock you out.
Then you will get Ally's cells today arond 2pm.

So we will update the blog when we get home today to as how everything goes.

Love ya Ryan and missed you so much.

Mommy