Thursday, January 29, 2009

January 29th Day -8

Well Ryan was up till 11 pm last night, I could not keep my eyes open...He would cry if I turned out the lights...so I talked to Child Life this morning and they told me to keep things a normal as possible. So if he does something wrong, disapline him as best we can. They say if we dont when we get home it will be difficult for us...

Today has gone well so far...
He had a great breakfast and no reacation to the chemo yet...we do not except this until sometime next week...probably around day -3 from what we are hearing.

Mary sunshine the clown was in this morning and he loved it...He looks for her all the time. I have to admit she is very funny..

We are going down to Marnies lounge today at 1 p, after his lunch so he can play for an hour and then back up for a nap. Transplant unit has a special time for everything as all the places have to be cleaned and disinfected before the kids can go down.

Ryan told me this morning : we can go home now mommy I have had enough here. Imagine we are only on day 3....

Counts today are

WBC - 6.2
RBC - 94
Plt - remain the same at 45

I saw a Dr. yesterday that was in the ER (he is a hematologist specialist)back in November. He was comiong out of the transplant unit and said what are you doing here...So I told him we were in transplant. (the look on his face) he said no one around here tell us anything. He then asked but who is the doner, they found one that quick, I said my daughter (he just said wow) that is amazing. Then I told him about the blasts (0 in the bone marrow ) and he said you could not be in a better position...

So so far very positive, I try not to get to far ahead of myself.
Well Lunch is here so we are off for now.
:)

2 comments:

  1. I saw the pictures on facebook of Ryan with the clown today...Great pics! I'm gald to hear the ER Doc thinks he's in a good position. We'll keep checking out your blog and praying and sending most excellent vibes your way. Take care of youself Sue. I'm sending you a message on facebook so check it out! XOXO

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  2. Take care of yourselfe and big kisses to Ryan from Portugal. He is always in my prayers. I wish you a good weekend. Paula

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