January 27th, 2009

Ryan fell asleep last night at 11 pm and was awake at 4 am with itchy feet, that is nothing new...
Could be a reaction to the Septra ( preventative med for chest infections) or jsut part of the disease.
He fell back asleep at 4:30 and then was up at 6:45. He had a great breakfast and they administered Dilantin through this IV at 11: am( this is an anti seizure medicine) one that is used before they start his first form of Chem ( Busulfan ) which can cause seizures. It has made him v ery sleepy, they say it feels to them like they are drunk, so he may be dizzy when he walks so we have to be careful...

...he will continue on the Dilantin by mouth at a low dose to maintain levels so they can prevent seizures from occuring. The Chemo start in the middle of the night tonight starting at 3am and runs for 2 hours and they administer it every 6 hours...so he get a 4 hour break between doses....so that will run until Saturday at 7pm and then he has a break on Sunday with only hydration.

His counts are still ok, they are dropping, Whote count is 5.9, Red counts 101 and platelets are 49. We will not see them go back up until transplant is over as the chemo will start to kill the cells...so he will need platelets and blood tranfusions regularly....

We again start on Monday on another Chemo (Cyclophosphamide) for 2 days and then I think another chemo for Wednesday and Thursday and then Friday is the day....DAY (0).
Ally will come in and have her bone marrow harvested and then to Ryan in the afternoon and we go into isolation...

They came around this morning to change the posters in the room , so I can not wait until he wakes ups and sees the dinosaurs....
He got the Toronto Raptors signatures yesterday and the author Robert Munch is here today reading to the kids...Sick Kids is truely an amazing place..

will post more tomorrow, hope everyone is well.