Ryan ,
We went to SKH today for a check up!
Dr. Gassas was on vacation so mommy was a little upset that it has been so long since we have actually spoken to a Dr. I had a lot of questions and I asked the nurse if I could ask her the questions and if she could not answer then to refer me to a Dr. They were OK with this.
She examed you and said that she can not feel your spleen....this is good news.
She said you looked great, so we must be doing something right.
Chris took your blood and sent it away for the CBC, Bio Chem, results that we get with in an hour. Everything looks great! Your fish test has been sent out and we should have an answer on Monday. This will tell us if you are still holding all of your sister's cells....Crossing fingers....
We are allowed to take you to Montreal for a weekend as they have a transplant center at St. Justine's Hospital and should we run into any problems we can take you there....this is good Ryan we can go away for a few days and get away from our house....
If all stays 200/200 for the next couple of tests you can get your central line removed hopefully and go to school in September as per the hospital...Mommy and Daddy have decided to keep you out of school until January as precaution. Ryan there are just to many risks involved. Your immune system will not be back to full strengh and we do not want to take any chances.
You also may be able to go on your wish with Children's Wish in September or October depending on results and if your line is out. I know you want to go to Disney so bad...
We will get you there, Ryan.
Mommy is trying to get back to a normal schedule and will work out the details in the next few months....before I make any changes I need to see that you stay in remission for more than just one blood test..Maybe that is silly of me, but I want to make my decision based on the best information possible...and if you need me for a longer period of time, this is where I will be ...but if you continue to do well, it may be best for you to get back to your normal life with your friends and school, activities, etc.
Love ya lots,
Mommy
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Hey Ryan:
ReplyDeleteWay to go!!! Montreal, Disney, time with friends, back to school, social time with people who have missed you very much - wow - so much for you to look forward to. You, your mom, dad, sisters, grandparents, aunts, uncles, doctors and nurses have together done a most wonderous job getting you to where you are today. Congratulations to all.
Suzie - normalcy - what a treat that will be for all of you.
Elaine
Wow! Absolutely great news. A long time awaited for. Everyone must be thrilled.
ReplyDeleteI think its a good idea to hold Ryan back from school till January just to be safe. Disney in September/Oct what an awesome vacation that will be. A needed one at that. Sue, Dave, Ryan, Ally and Kayla definately deserve a vacation away. Time to relax, enjoy and have some fun!!!
Let's hope good news on Monday.
Thinking of you all.
Love ya lots,
Tina
xo