Ryan ,
At the hospital last Wednesday your cells had increased from 5 to 8. I think we were all under the impression we would be heading for a second DLI on May 27th. Mommy was worried that the cells being 8 were based on a test that was done on May 4th and we were now coming up to May 15th so I called the hospital looking for the results that were done on the 13th of May.
When I called they said that they had not received them back, but not to worry. It was the long weekend so I knew we would have to wait until Tuesday to hear from them. I woke up and called Daddy at work and told him to call the hospital and talk to Jane. He did and he called me back with in a few minutes and when I answered he just said " 4"
My response was 4 what? He said he has 4 cells...I was so happy that your cells had gone down. I was positive that they would have gone up. So we had to go into hospital today for another test to see if in a week they have increased...So we wait. Jane said to call on Monday and she will get us the results.
Ryan, you have been a handful lately. I am not sure if you have turned four and are more aware and more verbal then before. You are giving Daddy and I a run for our money. You are not listening very well and bed time has become even harder than before.
I am thinking it is a stage. Your sister is in her big girl bed and is doing great. Actually she stays in her bed and you don't. Who would have figured that to be the case.
You and Ally are starting to play very well together and you love her so very much. The first thing she does in the morning now that she is mobile, is runs into your room, gets in your bed with you under the covers and screams RY RY. You are always watching out for her and making sure she does not get into trouble.
You are a really good big brother and I am sure Kayla thinks that you are a really good little brother to.
Hang in there Ryan we are hoping for some more good news next week.
Love ya
Mommy.
Wednesday, May 20, 2009
Saturday, May 16, 2009
May 16th - Day +100
Congratulations Ryan,
We were told on Jan 9th that once you were in transplant the first 100 days were critical.
Congratulation you have gotten past the first 100 days....HOORAY!!!!!!!!!
It has been a little harder than we thought after finding out that you did not take your sisters full bone marrow. We came out with 197 Ally VS 3 Ryan. It has been like a little roller coaster, your cells have been going up and down for the last 2 months.
We have had to turn to the DLI - using Ally white cells and infusing them into you.
Ryan we used one DLI just after Easter and your cells seemed to come down. We managed to get them down to 5.
Unfortunately, we were told on Wednesday that just passed that your cells have started to increase again. Not the news we were hoping for, your cells now stand at 8 cell . So they have done another fish test and we are awaiting the news.
I called yesterday to see if they had heard anything and the response was not yet, but not to worry. Easier said than done. My fear is that if we were at 8 cells on the 4th what is it now, we are 12 days past that point. I am hoping they went down, but have prepared myself after talking with Dr. Gassas on Wednesday that it is most likely we will have to use the 2nd out of 3rd DLI.
(Ally White cells)
This is scheduled for May 27th unless the cells have gone down ( we would not use) or have really increased than I think they will schedule you in sooner.
Dr. Gassas did say that you could live with some of your own cells for the rest of your life with out relapse, but the chance of relapse is much greater with your cells.
Mommy feels like she is on a roller coaster that never stops, we just go up and down and round and round. I am fearful of losing you one day and grateful that you are doing so well.
Ryan I wish we could see our future, as this was not the plan. But our plan has now taking a bit of a turn and we will see it through and continue our plan in life when we are done with this journey. Ryan sometimes life throws us these loops and we just have to find a way to cope and carry on.
Alot of people have told us that we are strong and they don't know how we do it. We are not sure how we do it either, we just know we have to for you. Daddy and I find ourselves, watching your every move, watching you breath when you sleep, watching you play with your sisters and loving them so much. We just take it all in. I find myself crying myself to sleep almost every night, taking little breaks in the day while you nap and crying a bit more, so you dont see me. So are we strong, maybe, but I think that you give us that strength, along with Kayla and Ally. There are days when we do not feel that we can do this anymore, we are tired, drained and exhausted, but our love for you, Kayla and Ally is so much stronger than all of this put together.
We are a family and we will get through this for you.......
Love always
Mommy.
We were told on Jan 9th that once you were in transplant the first 100 days were critical.
Congratulation you have gotten past the first 100 days....HOORAY!!!!!!!!!
It has been a little harder than we thought after finding out that you did not take your sisters full bone marrow. We came out with 197 Ally VS 3 Ryan. It has been like a little roller coaster, your cells have been going up and down for the last 2 months.
We have had to turn to the DLI - using Ally white cells and infusing them into you.
Ryan we used one DLI just after Easter and your cells seemed to come down. We managed to get them down to 5.
Unfortunately, we were told on Wednesday that just passed that your cells have started to increase again. Not the news we were hoping for, your cells now stand at 8 cell . So they have done another fish test and we are awaiting the news.
I called yesterday to see if they had heard anything and the response was not yet, but not to worry. Easier said than done. My fear is that if we were at 8 cells on the 4th what is it now, we are 12 days past that point. I am hoping they went down, but have prepared myself after talking with Dr. Gassas on Wednesday that it is most likely we will have to use the 2nd out of 3rd DLI.
(Ally White cells)
This is scheduled for May 27th unless the cells have gone down ( we would not use) or have really increased than I think they will schedule you in sooner.
Dr. Gassas did say that you could live with some of your own cells for the rest of your life with out relapse, but the chance of relapse is much greater with your cells.
Mommy feels like she is on a roller coaster that never stops, we just go up and down and round and round. I am fearful of losing you one day and grateful that you are doing so well.
Ryan I wish we could see our future, as this was not the plan. But our plan has now taking a bit of a turn and we will see it through and continue our plan in life when we are done with this journey. Ryan sometimes life throws us these loops and we just have to find a way to cope and carry on.
Alot of people have told us that we are strong and they don't know how we do it. We are not sure how we do it either, we just know we have to for you. Daddy and I find ourselves, watching your every move, watching you breath when you sleep, watching you play with your sisters and loving them so much. We just take it all in. I find myself crying myself to sleep almost every night, taking little breaks in the day while you nap and crying a bit more, so you dont see me. So are we strong, maybe, but I think that you give us that strength, along with Kayla and Ally. There are days when we do not feel that we can do this anymore, we are tired, drained and exhausted, but our love for you, Kayla and Ally is so much stronger than all of this put together.
We are a family and we will get through this for you.......
Love always
Mommy.
Sunday, May 10, 2009
May 10th- Day + 93 Ryan's 4th Birthday and Mothers Day
Ryan,
We were introduced on May 10th 2005, at 12.26 am. Daddy and I came into your room while you slept, and cuddled up with you and told you how much we love you. Then we just had to wake you up to tell you Happy 4th Birthday!!!! You were so excited, you said I'm four.
You fell back asleep and woke at 6:30 am and ran into our room and said do you know what day it is. It's Mother's Day! Happy Mother's Day Mommy. My heart sank. I was waiting for it is my birthday let's open presents.
Your Uncle Jim, Auntie Brenda, Uncle Philip, Autie Ro Ro, and Nana flew in from Ireland to spend your special day with you. Your Gramma, and Grandad from Montreal came as well.
What a lucky little boy to have so many people make the longs trips that they have made to celebrate with you.
Unfortunately, this year we only had family due to isolation and the risk of germs. Next year it will be different, we will have all your friends and family and make it so big as you will be turning "Five" Wow, five how time flies. I remember it like it was yesterday when you were born.
You have turned out to be one amazing little boy. You are smart, funny, inquisitive, and stubborn. I think you get that from your mommy "Sorry" not the best quality. I guess we could look at it as you will not let you cancer get you down, so if that is you been stubborn, good for you sweetheart...Daddy and I were just saying you have never complained once out, the needles, the masks that you have to wear when we leave the house. You remind us about it all the time, you make sure that no one is sick around you, or you ask for a mask. We could not be prouder of you. You are fighting this disease with courage and strengh.
Uncle Jim and Auntie Brenda brought over a beautiful uniform for you. A replica of Uncle Jim uniform from the Irish police. They had it tailored made to your size and you were thrilled.
They also sent an email to the local Milton police department explaining it was your birthday and what you are going through and they asked if they could make a trip to the house to see you.
So you got to sit in a police car, press all the buttons to make the loud sirens and police noises. You thought it was so much fun...When you had, had enough you said the police man, thank you for coming, but I am going inside now because I am getting cold. To any of your readers of the blog, I can not post a picture, but the pictures are on face book. I must say, and I am biased but Ryan you make one cute police man even if you are holding a stuffed penguin..
We had a cake, you requested Spider-Man, so mommy, Auntie Brenda and Autie Ro Ro, worked hard to get it done. You thought it was great. I think we were all glad it was done and worked out.
You were so tired you were asleep on the couch by 5:30, I woke you about an hour later and you were so grumpy. I should have known better, but I did not want you awake all night.
Daddy and I are so grateful to daddy's family for coming over from Ireland and making a holiday out of your Birthday. Ryan we are so fortunate to have great family on both sides. They have all turned there lives upside down for us during this crazy and difficult time.
Happy Birthday Ryan! We all love you so very much.
We were introduced on May 10th 2005, at 12.26 am. Daddy and I came into your room while you slept, and cuddled up with you and told you how much we love you. Then we just had to wake you up to tell you Happy 4th Birthday!!!! You were so excited, you said I'm four.
You fell back asleep and woke at 6:30 am and ran into our room and said do you know what day it is. It's Mother's Day! Happy Mother's Day Mommy. My heart sank. I was waiting for it is my birthday let's open presents.
Your Uncle Jim, Auntie Brenda, Uncle Philip, Autie Ro Ro, and Nana flew in from Ireland to spend your special day with you. Your Gramma, and Grandad from Montreal came as well.
What a lucky little boy to have so many people make the longs trips that they have made to celebrate with you.
Unfortunately, this year we only had family due to isolation and the risk of germs. Next year it will be different, we will have all your friends and family and make it so big as you will be turning "Five" Wow, five how time flies. I remember it like it was yesterday when you were born.
You have turned out to be one amazing little boy. You are smart, funny, inquisitive, and stubborn. I think you get that from your mommy "Sorry" not the best quality. I guess we could look at it as you will not let you cancer get you down, so if that is you been stubborn, good for you sweetheart...Daddy and I were just saying you have never complained once out, the needles, the masks that you have to wear when we leave the house. You remind us about it all the time, you make sure that no one is sick around you, or you ask for a mask. We could not be prouder of you. You are fighting this disease with courage and strengh.
Uncle Jim and Auntie Brenda brought over a beautiful uniform for you. A replica of Uncle Jim uniform from the Irish police. They had it tailored made to your size and you were thrilled.
They also sent an email to the local Milton police department explaining it was your birthday and what you are going through and they asked if they could make a trip to the house to see you.
So you got to sit in a police car, press all the buttons to make the loud sirens and police noises. You thought it was so much fun...When you had, had enough you said the police man, thank you for coming, but I am going inside now because I am getting cold. To any of your readers of the blog, I can not post a picture, but the pictures are on face book. I must say, and I am biased but Ryan you make one cute police man even if you are holding a stuffed penguin..
We had a cake, you requested Spider-Man, so mommy, Auntie Brenda and Autie Ro Ro, worked hard to get it done. You thought it was great. I think we were all glad it was done and worked out.
You were so tired you were asleep on the couch by 5:30, I woke you about an hour later and you were so grumpy. I should have known better, but I did not want you awake all night.
Daddy and I are so grateful to daddy's family for coming over from Ireland and making a holiday out of your Birthday. Ryan we are so fortunate to have great family on both sides. They have all turned there lives upside down for us during this crazy and difficult time.
Happy Birthday Ryan! We all love you so very much.
Monday, May 4, 2009
May 4th -Day + 87
Ryan,
You have confirmed it. You are a little monkey.
Friday morning you had an accident in your bed. Mommy had to clean you up and I cleaned your lines right before I put you in the tub. You cried your eyes out because of your accident and asked for the syringes that I used to do your lines. So I gave in and you played in the tub as you always do.
Only problem this time , is you decided to pretend you could do your lines yourself and inserted bath water into you blood stream. Mommy thought that if she just pulled back and took out the water and cleaned your lines again all would be fine. I was wrong, very wrong.
I told your nurse about it at 4pm , and she looked at me and said call the hospital. When I asked her why she said there are alot of bacterias in water, some that are very serious, especially if they hit your blood stream. So we called the hospital and they said if you spiked a fever to bring you in.
All seemed to be fine, until mommy went out for an hour. I got a call from you daddy saying that you had spiked a fever. I came straight home and took you to the hospital. I called on the way to let them know.
They were all amazed that you would even know how to do this. I guess I can take credit for that. I have a very intelligent little boy. You are smarter than you know.
The Dr. asked you to tell him what happened and you described it perfectly. You also mentioned that if your mommy could do it than so could you. I don't think so. You were made to promise that you would never do it again....
Your fever broke after 4 hours and you were on antibiotics for 3 days. We were released this morning and your Dr. was happy with your progress.
Dr. Gassas says you look great and that your blood counts are good. He also mentioned this morning that since the DLI you know only have 5 of your own cells. Yeah. Great news.
He said that Ally cells have destroyed 10 of your and she only has to destroy 5 more for us to have a perfect 200/200 (Ally cells only) if we can achieve this than your army will have surrendered to your sister.
We did another blood test today as the last one was 2 weeks ago, so this will tell us if she has conquered your troops of if we have some more work to do.
I hope and pray we have done it and we can deem you in remission. This is my wish for you.
If anyone were to see you now, they would all be amazed at the difference in you from January to now. You are full of energy, full of life. Maybe this is Ally coming out in you. She gives us a run for our money on a daily basis. If you have any of you sister in you, we are sure to win this battle.
I had a great time with you this weekend Ryan and as always am so proud of you and what you have accomplished.
Love your mom.
You have confirmed it. You are a little monkey.
Friday morning you had an accident in your bed. Mommy had to clean you up and I cleaned your lines right before I put you in the tub. You cried your eyes out because of your accident and asked for the syringes that I used to do your lines. So I gave in and you played in the tub as you always do.
Only problem this time , is you decided to pretend you could do your lines yourself and inserted bath water into you blood stream. Mommy thought that if she just pulled back and took out the water and cleaned your lines again all would be fine. I was wrong, very wrong.
I told your nurse about it at 4pm , and she looked at me and said call the hospital. When I asked her why she said there are alot of bacterias in water, some that are very serious, especially if they hit your blood stream. So we called the hospital and they said if you spiked a fever to bring you in.
All seemed to be fine, until mommy went out for an hour. I got a call from you daddy saying that you had spiked a fever. I came straight home and took you to the hospital. I called on the way to let them know.
They were all amazed that you would even know how to do this. I guess I can take credit for that. I have a very intelligent little boy. You are smarter than you know.
The Dr. asked you to tell him what happened and you described it perfectly. You also mentioned that if your mommy could do it than so could you. I don't think so. You were made to promise that you would never do it again....
Your fever broke after 4 hours and you were on antibiotics for 3 days. We were released this morning and your Dr. was happy with your progress.
Dr. Gassas says you look great and that your blood counts are good. He also mentioned this morning that since the DLI you know only have 5 of your own cells. Yeah. Great news.
He said that Ally cells have destroyed 10 of your and she only has to destroy 5 more for us to have a perfect 200/200 (Ally cells only) if we can achieve this than your army will have surrendered to your sister.
We did another blood test today as the last one was 2 weeks ago, so this will tell us if she has conquered your troops of if we have some more work to do.
I hope and pray we have done it and we can deem you in remission. This is my wish for you.
If anyone were to see you now, they would all be amazed at the difference in you from January to now. You are full of energy, full of life. Maybe this is Ally coming out in you. She gives us a run for our money on a daily basis. If you have any of you sister in you, we are sure to win this battle.
I had a great time with you this weekend Ryan and as always am so proud of you and what you have accomplished.
Love your mom.
Wednesday, April 22, 2009
April 22nd- Day + 75
Ryan,
You said the other day that you talked to God and he told you that he was going to make you better. Well you must be doing something right because your bone marrow is clear. Your JMML is not back from what we can see. You are 21/2 months post transplant and it is not back so far.
Most children with JMML relapse with in a few months, we are almost there and you have not. Ryan keep doing what you are doing! Maybe I should be saying Ally keep doing what you are doing! Then again, I could just say keep on working together as a team. You both can do it, you can win this battle. I have amazingly strong willed children, so if anyone can beat this the two of you can.
Ryan you give me the strength to keep holding on. Every time I look at your face, each time we talk , each time you make me laugh. Each kiss and hug I get, the way you are with your sisters and how much you love them and us. All of this makes me love you more and more each day. You really are an inspiration to us all.
Dr. Gassas basically said, if I have this correct is nothing in your bone marrow ( ie: looks like remission) your blood work also looks fine so that would classify remission. But because you still have 15/200 cells they can not be 100% sure that it is not lingering and looking to resurface again. Your monocytes are with in normal range so another good sign.
We wait now until Friday to see if your cells have decreased since your DLI last week.
We are hoping that this is the case. Dr Gassas at a conference next week in England so we only have to go back on May 6th. This is like a nice little vacation away from the hospital.
I can not wait, the weather will hopefully get nicer and we can go to Niagara for a picnic lunch as a family. We still have to stay relatively close to the hospital to be on the safe side.
Ryan today was a good day, better than many others. We had an idea your JMML was not back but until you hear it from the Dr's you are alway left wondering for sure. We know it can come back at any time but we will run with this for now and hope that your fish test that was done today shows less cells. We should have those results by Friday.
Keep up the great work Ryan and lets Ally's troops conquer.
Mommy.
You said the other day that you talked to God and he told you that he was going to make you better. Well you must be doing something right because your bone marrow is clear. Your JMML is not back from what we can see. You are 21/2 months post transplant and it is not back so far.
Most children with JMML relapse with in a few months, we are almost there and you have not. Ryan keep doing what you are doing! Maybe I should be saying Ally keep doing what you are doing! Then again, I could just say keep on working together as a team. You both can do it, you can win this battle. I have amazingly strong willed children, so if anyone can beat this the two of you can.
Ryan you give me the strength to keep holding on. Every time I look at your face, each time we talk , each time you make me laugh. Each kiss and hug I get, the way you are with your sisters and how much you love them and us. All of this makes me love you more and more each day. You really are an inspiration to us all.
Dr. Gassas basically said, if I have this correct is nothing in your bone marrow ( ie: looks like remission) your blood work also looks fine so that would classify remission. But because you still have 15/200 cells they can not be 100% sure that it is not lingering and looking to resurface again. Your monocytes are with in normal range so another good sign.
We wait now until Friday to see if your cells have decreased since your DLI last week.
We are hoping that this is the case. Dr Gassas at a conference next week in England so we only have to go back on May 6th. This is like a nice little vacation away from the hospital.
I can not wait, the weather will hopefully get nicer and we can go to Niagara for a picnic lunch as a family. We still have to stay relatively close to the hospital to be on the safe side.
Ryan today was a good day, better than many others. We had an idea your JMML was not back but until you hear it from the Dr's you are alway left wondering for sure. We know it can come back at any time but we will run with this for now and hope that your fish test that was done today shows less cells. We should have those results by Friday.
Keep up the great work Ryan and lets Ally's troops conquer.
Mommy.
Monday, April 20, 2009
April 20th - Day+ 73
Ryan,
Look how far you have come. We are at day + 73 post transplant and you are doing great considering all you have been through.
Mommy walked the 5 km MS walk yesterday and found out that she is out of shape. I need walk more often. You gave me a sticker to wear on my hand and you said " Think about me, don't forget" I got home and the sticker was still on my hand and you were thrilled.
You had a great weekend with your sisters. You spent a lot of time at the park and we took a walk on Saturday night. You are sleeping great in your bed and still eating and drinking well.
Mommy had a rough week last week and relaxed yesterday, once the walk was done.
You and I feel asleep for a short time on the couch yesterday, we curled up under a blanket to keep warm and drifted off to sleep. Mommy enjoyed each minute that you were asleep in my arms. I watched you like I did when you were a baby.
Ryan, you have started to want to play with your friends again and are becoming more comfortable in your surroundings since we have been home. I am so pleased to see this.
Mommy, has realized through all of this what friendship really means. One day when you are all grown up you will have many friends, I am certain of this. and you will understand how important they are.
Just remember friends are not always there during just the good times, but they are also there during the difficult and not so good ones. Being there through the good times is easy, it is being there through the bad that is much more difficult. Daddy and I have come to know that we have a great family and we have great friends.
We have had amazing friends from before you were sick who have been beside us every step of the way , and we have met some really amazing friends since you got sick, who have become good friends that have also been right there taking this ride with us.
So again, mommy wants to thank everyone who has been there for our family during this time. We could not have done it with out all of you. Ryan, their support is everything. One day you will look back on all of this and see what this journey was all about. I will be starting your scrap book soon. Your shadow box in done and will be hung in your room today, to remind you of what you have accomplished so far on this journey.
Love you babe,
Mommy
Look how far you have come. We are at day + 73 post transplant and you are doing great considering all you have been through.
Mommy walked the 5 km MS walk yesterday and found out that she is out of shape. I need walk more often. You gave me a sticker to wear on my hand and you said " Think about me, don't forget" I got home and the sticker was still on my hand and you were thrilled.
You had a great weekend with your sisters. You spent a lot of time at the park and we took a walk on Saturday night. You are sleeping great in your bed and still eating and drinking well.
Mommy had a rough week last week and relaxed yesterday, once the walk was done.
You and I feel asleep for a short time on the couch yesterday, we curled up under a blanket to keep warm and drifted off to sleep. Mommy enjoyed each minute that you were asleep in my arms. I watched you like I did when you were a baby.
Ryan, you have started to want to play with your friends again and are becoming more comfortable in your surroundings since we have been home. I am so pleased to see this.
Mommy, has realized through all of this what friendship really means. One day when you are all grown up you will have many friends, I am certain of this. and you will understand how important they are.
Just remember friends are not always there during just the good times, but they are also there during the difficult and not so good ones. Being there through the good times is easy, it is being there through the bad that is much more difficult. Daddy and I have come to know that we have a great family and we have great friends.
We have had amazing friends from before you were sick who have been beside us every step of the way , and we have met some really amazing friends since you got sick, who have become good friends that have also been right there taking this ride with us.
So again, mommy wants to thank everyone who has been there for our family during this time. We could not have done it with out all of you. Ryan, their support is everything. One day you will look back on all of this and see what this journey was all about. I will be starting your scrap book soon. Your shadow box in done and will be hung in your room today, to remind you of what you have accomplished so far on this journey.
Love you babe,
Mommy
Thursday, April 16, 2009
April 16th- Day + 69
Ryan,
WE ARE ALL HOME!
You went in yesterday for your bone marrow aspiration! You were funny, the Dr. said you are going to take a little nap and you said" I don't want to take a nap" and you were in a sleep, just like that. Daddy had to come into the room just to watch..I think he thinks you are funny.
You sister did it the day before and daddy took a video of her when she was on her happy medication.
Dr. Gassas explained it like this:
Ryan you have a little army of soliders that have not given up yet. So we have to increase Ally's troop to try to over power yours. So we sent in 40 million cells yesterday to do just that...
You would think that 40 million would be able to take on 14 ( which is proabably more like 5000) when you do the actual math. So we wait to see what this war will do. Who will win.
Sorry Ryan I have to take Ally's side on this one, as she needs to kick some real butt now.
Please let your 14 soliders surrender to her troops. This is what we all need, this is what I need and this is expecially what you need.
We have another set of troop frozen and ready to come out should we need and another set after that.
Ally was able to produce 3 troops instead of the 2 they were looking for. Go Ally.
Ryan, we are awaiting the results of your bone marrow aspiration, this will give us a guide line to how we move forward. If there are no signs of your JMML being back then we can move slow, like we did yesterday. If it is back, then we will have to send in some more of Ally's troops to destroy yours. I call them the reinforcements. Destroy seems like a harsh word to use, but as your mommy if your cells are destroyed, then you will live a much better life and will continue to do great things. And we can deal with whatever happens after that together.
Ryan if we can get through this we can get through anything!
You wished last night before you went to bed that your line and bandage was gone and you could do what ever you wanted and go where ever you wanted. So now take a rest, let Ally's body do its thing and then guess what you will be as good as new and you can get on it. Go where ever you want, and do whatever you want. And I will be your biggest fan, cheering you along the way.
Love you monkey,
Mommy
WE ARE ALL HOME!
You went in yesterday for your bone marrow aspiration! You were funny, the Dr. said you are going to take a little nap and you said" I don't want to take a nap" and you were in a sleep, just like that. Daddy had to come into the room just to watch..I think he thinks you are funny.
You sister did it the day before and daddy took a video of her when she was on her happy medication.
Dr. Gassas explained it like this:
Ryan you have a little army of soliders that have not given up yet. So we have to increase Ally's troop to try to over power yours. So we sent in 40 million cells yesterday to do just that...
You would think that 40 million would be able to take on 14 ( which is proabably more like 5000) when you do the actual math. So we wait to see what this war will do. Who will win.
Sorry Ryan I have to take Ally's side on this one, as she needs to kick some real butt now.
Please let your 14 soliders surrender to her troops. This is what we all need, this is what I need and this is expecially what you need.
We have another set of troop frozen and ready to come out should we need and another set after that.
Ally was able to produce 3 troops instead of the 2 they were looking for. Go Ally.
Ryan, we are awaiting the results of your bone marrow aspiration, this will give us a guide line to how we move forward. If there are no signs of your JMML being back then we can move slow, like we did yesterday. If it is back, then we will have to send in some more of Ally's troops to destroy yours. I call them the reinforcements. Destroy seems like a harsh word to use, but as your mommy if your cells are destroyed, then you will live a much better life and will continue to do great things. And we can deal with whatever happens after that together.
Ryan if we can get through this we can get through anything!
You wished last night before you went to bed that your line and bandage was gone and you could do what ever you wanted and go where ever you wanted. So now take a rest, let Ally's body do its thing and then guess what you will be as good as new and you can get on it. Go where ever you want, and do whatever you want. And I will be your biggest fan, cheering you along the way.
Love you monkey,
Mommy
Subscribe to:
Posts (Atom)
