Ryan,
You had a hard time yesterday getting any food or drink down, but you managed to get 190 ml of milk in last night. Unfotunaltley it all came up about 2 hours later and you were complaining alot about tummy pain and wanted to lay very still.
We have watched all the Jurrasic Park movies now and we are watching the first one again now.
I woke up this morning and there was a big note on the board saying your whites were 0.7 and that you now have poly's 0.11, so we need 0.39 more to go until the dance.
Counts are :
WBC- 0.7
RBC- 89
PLT - 36 holding for now.
You have had some milk this morning, so it is a start and you had a few froot loops...so hopefully it will progress as the day goes on.
You should be in step down in a few day and we will see the nurses do there dance. I think Mommy and everyone we know will be doing the poly dance to.
Ryan, Daddy cute Ally's hair. I think that is a mommy daughter thing, he cute her bangs, which I have been growing for a long time. So now I have to start all over again. He told me we had this talk, but I do not recall telling him to cut them short, what I remember is, "please just cut the ones that are in her face and leave the rest"...What was he thinking. LOL
Ryan, can't wait to see what the next couple of days hold. Daddy and Mummy are on a high right now. I am sure that once day + 28 hits and they do your blood test we will start to stress again.
I have been told it take about 2 weeks to get the results, so we will be doing alot of praying and hoping again.
Love you,
M0mmy
Friday, February 27, 2009
Thursday, February 26, 2009
February 26th- Day + 20
Ryan,
You ate yesterday, we started with crakers, then moved on to penne pasta, a bite of a bannana and then at 9 pm last night you asked for pickles, but you were specific, they had to be long, big and juicy pickles.
Your daddy luckly was still downtown, he went to 4 stores and called me to say he could not find any...you were so upset. About 20 minutes later he called back and said he found a jar and was bringing up to you...your face was amazing. We saw the biggest smile.
Ashley, your nurse from the day before knew you liked dinosaurs, so she send up the Jurassic Park trilogy for you to watch. So we started with the first movie last night, I was amazed you stayed up to watch it as you were up so early yesterday morning. We had such a nice night.
All your food stayed down, so this is another hurdle I think we have passed.
Mary Sunshine will be in today to see you, and we will watch the second movie n teh jurassic park series.
Daddy is not coming down today, as he has a very busy day with work and he needs to make sure that he is back for Kayla and Ally. They are going to have dinner with Cameo, Nick, Charlotte and Gabriel. Ryan we need to remind daddy not to forget the wine and dessert. Hopefully he reads mommy's blog today.
Your counts are stable:
WBC- 0.5
RBC- 90
PLT -38
I have been told that the poly test gets done on Monday's, Wednesdays and Friday so that will be done tomorrowwe (hopefully there will be a few) Mommy has her fingers crossed...and I am sure everyone who reads the blog and is thinking of you has there's crossed to.
We are waiting for that poly dance...I think Mommy will join the nurses in this celebration. You will probably wonder what we are doing and why we look silly, dancing by your bed.
When you are older and read this you will understand why we are celebrating.
You ate yesterday, we started with crakers, then moved on to penne pasta, a bite of a bannana and then at 9 pm last night you asked for pickles, but you were specific, they had to be long, big and juicy pickles.
Your daddy luckly was still downtown, he went to 4 stores and called me to say he could not find any...you were so upset. About 20 minutes later he called back and said he found a jar and was bringing up to you...your face was amazing. We saw the biggest smile.
Ashley, your nurse from the day before knew you liked dinosaurs, so she send up the Jurassic Park trilogy for you to watch. So we started with the first movie last night, I was amazed you stayed up to watch it as you were up so early yesterday morning. We had such a nice night.
All your food stayed down, so this is another hurdle I think we have passed.
Mary Sunshine will be in today to see you, and we will watch the second movie n teh jurassic park series.
Daddy is not coming down today, as he has a very busy day with work and he needs to make sure that he is back for Kayla and Ally. They are going to have dinner with Cameo, Nick, Charlotte and Gabriel. Ryan we need to remind daddy not to forget the wine and dessert. Hopefully he reads mommy's blog today.
Your counts are stable:
WBC- 0.5
RBC- 90
PLT -38
I have been told that the poly test gets done on Monday's, Wednesdays and Friday so that will be done tomorrowwe (hopefully there will be a few) Mommy has her fingers crossed...and I am sure everyone who reads the blog and is thinking of you has there's crossed to.
We are waiting for that poly dance...I think Mommy will join the nurses in this celebration. You will probably wonder what we are doing and why we look silly, dancing by your bed.
When you are older and read this you will understand why we are celebrating.
Wednesday, February 25, 2009
February 25th Day +19
Ryan,
Day 19 and you have asked to go home and have your birthday. The only problem with this is that you are not willing to eat or drink....
We continue to try and get you to eat something. Dr. Mira has reduced your TPN ( food suppliment) to try to get you stimulated to eat. You antibiotics have been discontinued, and your morphine reduced yet again to .41....Thing are looking good.
Counts today:
WBC - 0.5
RBC -86
PLT - 59 again you got a good bag of platelets yesterday.
Mommy went for lunch today with Karen and Sylvie and had a wonderful time. We laughed and laughed and had a fun time. Ryan they both have children just about your age and you will meet them all when we are out of here. Mommy needs a break some days and I know one day you will understand that when you read about your journey. You cried when I left and told me if I left you something would happen to you. Wow, how you get to my heart. How do you know how to hit me where it hurts...I felt really bad, but knew your were in good hands with your daddy. Sylvie, Karen I had a great time. Thank you so much. Dave is jeleous, he wishes he went.
Mary Sunshine came yesterday while you were sleeping and dropped of a pokemon book. how lucky you are. She will be back on Thursday to read it to you.
So now we need those poly to rise so you can leave your room for a little while..This will come in time. Your legs are starting to hurt, that is because you have been in bed for 3 weeks straigt. They have told me we can give you a shot of morphine if it gets really bad.
All in all, they tell me you are a text book case. no major issues yet and that you have the best Dr. in the hospital on your case..Ryan you are in good hands..
You are getting a little more bold every day, it must be a good sign, I know it must be so hard to be 31/2 and stuck in this little room.
Baby, it wont be to much longer, hang in there..
I love you so much,
Mommy
XOXXOXO
Day 19 and you have asked to go home and have your birthday. The only problem with this is that you are not willing to eat or drink....
We continue to try and get you to eat something. Dr. Mira has reduced your TPN ( food suppliment) to try to get you stimulated to eat. You antibiotics have been discontinued, and your morphine reduced yet again to .41....Thing are looking good.
Counts today:
WBC - 0.5
RBC -86
PLT - 59 again you got a good bag of platelets yesterday.
Mommy went for lunch today with Karen and Sylvie and had a wonderful time. We laughed and laughed and had a fun time. Ryan they both have children just about your age and you will meet them all when we are out of here. Mommy needs a break some days and I know one day you will understand that when you read about your journey. You cried when I left and told me if I left you something would happen to you. Wow, how you get to my heart. How do you know how to hit me where it hurts...I felt really bad, but knew your were in good hands with your daddy. Sylvie, Karen I had a great time. Thank you so much. Dave is jeleous, he wishes he went.
Mary Sunshine came yesterday while you were sleeping and dropped of a pokemon book. how lucky you are. She will be back on Thursday to read it to you.
So now we need those poly to rise so you can leave your room for a little while..This will come in time. Your legs are starting to hurt, that is because you have been in bed for 3 weeks straigt. They have told me we can give you a shot of morphine if it gets really bad.
All in all, they tell me you are a text book case. no major issues yet and that you have the best Dr. in the hospital on your case..Ryan you are in good hands..
You are getting a little more bold every day, it must be a good sign, I know it must be so hard to be 31/2 and stuck in this little room.
Baby, it wont be to much longer, hang in there..
I love you so much,
Mommy
XOXXOXO
Tuesday, February 24, 2009
February 24th - Day + 18
Good Morning Ryan,
You are not in the greatest spirits this morning, probably the benadryl....You get sleeply with this and you feel asleep last night as your tummy was not feeling very well and you were sick.
You are in need of platelets this moring and a blood transfusion....double whammy.....
I guess it is a good thing that Mary Sunshine will be in this afternoon, that will surely cheer you up.
Ryan, it is Tanya and Carol Ann Birthday today, so we hope that they have a wonderful day....
Counts today:
WBC - 0.3 same as yesterday
RBC - 70
PLT - 21
Mommy is hoping that Mira come in today and tells us that we can take the 2 anitbiotics away.
She told us yesterday that if your white's went up or remained the same that we would, and if you spiked a fever again we can restart them.
The nurse told us this morning it is really cold outside, it is a good thing we dont have to go anywhere today and maybe by the time we are out of here we will have warmer weather.
Daddy picked up Kayla last night and then your cousin Ethan and took them for dinner last night, they had a great time.
Daddy will be down for a visit later and again tomorrow so mommy can have lunch with Karen and Sylvie. (looking forward to it)
Keep up the great work Ryan,
Love you,
Mommy
You are not in the greatest spirits this morning, probably the benadryl....You get sleeply with this and you feel asleep last night as your tummy was not feeling very well and you were sick.
You are in need of platelets this moring and a blood transfusion....double whammy.....
I guess it is a good thing that Mary Sunshine will be in this afternoon, that will surely cheer you up.
Ryan, it is Tanya and Carol Ann Birthday today, so we hope that they have a wonderful day....
Counts today:
WBC - 0.3 same as yesterday
RBC - 70
PLT - 21
Mommy is hoping that Mira come in today and tells us that we can take the 2 anitbiotics away.
She told us yesterday that if your white's went up or remained the same that we would, and if you spiked a fever again we can restart them.
The nurse told us this morning it is really cold outside, it is a good thing we dont have to go anywhere today and maybe by the time we are out of here we will have warmer weather.
Daddy picked up Kayla last night and then your cousin Ethan and took them for dinner last night, they had a great time.
Daddy will be down for a visit later and again tomorrow so mommy can have lunch with Karen and Sylvie. (looking forward to it)
Keep up the great work Ryan,
Love you,
Mommy
Monday, February 23, 2009
February 23rd - Day +17
Ryan,
We watched the Oscars last night together and I think I fell asleep before you did..
You were loving watching Walle and the Kung Fu Panda clips as well as the dancing....
I did not hear you in the night, not once....Krista your nurse told me you did not wake and that she changed you twice in the night, something I usually do..I was so tired.
When we woke this morning, we woke to Julie, one of you favorite nurses telling us your white count was at o.3.....it is moving up you are doing so well.
As today is Monday, all the team on Unit 8B get together to discuss all the children on the ward and then the Dr.s come in and visit with us and let us know what is going on.
Dr. Mira came in and had her thumbs up, saying you are doing amazing and she is so proud of you. If your counts tomorrow are the same or higher they will take you off of your antibiotics, as they absorb into the liver and kidneys making them work a bit harder.
You continue not to want to eat anything, but this is common as chemo can affect the way things taste...and I have been told that you may like things you did not before and may dislike things you really liked before.. usually it is the stronger tasting things that children like after transplant..
We are going to have some issues when we get home as you love Strawberries, blueberries and blackberries. and they have all been listed as things you can not have...as they are harder to wash and are sprayed with chemicals....but we will come up with some new things that you like..
I have asked our social worker to register you with childrens wish foundation, so they are in the process of doing that for you.. hopefully once we have the all clear we can go away (the five of us) once you are better and your immune system is stronger..(we will play this by ear)
Counts today:
WBC - 0.3
RBC- 81
PLT - 30
Hopefully you will be engrafted sometime next week and then it will be a matter of getting you eating and drinking enough that they feel confident you will not get dehydrated. If you can do this we may get a few day passes home from about 2pm- 9pm and then back to sleep and hydration and then discharge....this will all depend on how you are doing and as long as no complications arise....
Ryan we are getting there....
Mommy.
We watched the Oscars last night together and I think I fell asleep before you did..
You were loving watching Walle and the Kung Fu Panda clips as well as the dancing....
I did not hear you in the night, not once....Krista your nurse told me you did not wake and that she changed you twice in the night, something I usually do..I was so tired.
When we woke this morning, we woke to Julie, one of you favorite nurses telling us your white count was at o.3.....it is moving up you are doing so well.
As today is Monday, all the team on Unit 8B get together to discuss all the children on the ward and then the Dr.s come in and visit with us and let us know what is going on.
Dr. Mira came in and had her thumbs up, saying you are doing amazing and she is so proud of you. If your counts tomorrow are the same or higher they will take you off of your antibiotics, as they absorb into the liver and kidneys making them work a bit harder.
You continue not to want to eat anything, but this is common as chemo can affect the way things taste...and I have been told that you may like things you did not before and may dislike things you really liked before.. usually it is the stronger tasting things that children like after transplant..
We are going to have some issues when we get home as you love Strawberries, blueberries and blackberries. and they have all been listed as things you can not have...as they are harder to wash and are sprayed with chemicals....but we will come up with some new things that you like..
I have asked our social worker to register you with childrens wish foundation, so they are in the process of doing that for you.. hopefully once we have the all clear we can go away (the five of us) once you are better and your immune system is stronger..(we will play this by ear)
Counts today:
WBC - 0.3
RBC- 81
PLT - 30
Hopefully you will be engrafted sometime next week and then it will be a matter of getting you eating and drinking enough that they feel confident you will not get dehydrated. If you can do this we may get a few day passes home from about 2pm- 9pm and then back to sleep and hydration and then discharge....this will all depend on how you are doing and as long as no complications arise....
Ryan we are getting there....
Mommy.
Sunday, February 22, 2009
February 22nd - Day + 16
Ryan,
We are day +16 and you may be on the way to engraftment..
Daddy called this morning to tell me the nurse came in and said Whites are 0.2......I asked for the rest of the number and he had no clue. I think Daddy was just as anxious as mommy, but would never let on. the nurse has now told us we need to be looking for graft vs host...
as vibrant red rash on the palms of your hand and the soles of your feet...we want a small amount of this....and so very loose stools is a good sign aswell.
They do have the possibility of going back down tomorrow, but for today I am the happiest person ever. It's a start.
It is your aunt's birthday today and she wished for this last night when she blew out her candles. That is all she wanted for her special day. Nicole you got your wish.
There is something about the # 22 I think, for all of you who do not know, that is the number of the house where Nicole and I grew up in Montreal. It is also , the day of Nicole and Ally's birthdays....and now it is the day Ryan's counts came up higher than 0.1....
You had a great day yesterday, Daddy said that you are your old self again....Ryan you are doing great....Your liver test this morning are down significantly, another great sign...
Counts today:
WBC - 0.2
RBC -76
PLT - 43
See you soon sweetheart....
Mommy
Saturday, February 21, 2009
February 21st - Day + 15
Ryan,
I left you last night and you were ok....I am so glad ...Daddy called me last night to tell me all the things you were saying....you are funny when you want to be.
I called and you were fast asleep by 9:30 pm and you slept until 8:30 am and you did not wake.
Your counts today :
WBC - o.1
RBC - 95
PLT - 17 so another transfusion scheduled for this morning...
I called you to see how you were doing and you seemed to sound a little down, probably all the medication.
I talked to your nurse today and we have dropped your morphine level from 1.22 to 1.0.
I asked her about the 0.1 white count and she told me it is the same as > 0.1 really....
she said that she knows we are anxious at this point but it is still early yet..so we continue to wait for your counts to rise.
Daddy tells me you are eating Froot loops and drinking... wonderful news and that they ran your liver counts again and they are down...everything seems to be on track Ryan.
I will be back at the hospital tomorrow to see you ....Keep up the great work sweetheart...we are all fighting right beside you ....Ally has done her job and now your body needs to let it work..
Ally and I went to the mall today to run soon erands and get you your Auntie Nicole a birthday gift and we stopped into say hello to our friend Leanne and we ended up staying for lunch....Thanks Leanne....it was fun....we then were heading home and decided to take a detour to Tim's to pick up coffee for Sherry and Steve..Happy Birthday Steve....
We were invited to Nicole's today to celebrate Chris's birthday but unfortunatley we could not make it as it is Auntie Nicole's birthday as well..Chris, Ryan says happy Birthday ....
Wow..February 22nd is a busy day for alot of people we know...
Happy Birthday to you all ....Enjoy.....Ryan can't wait to see you all ...hopefully it will be soon
On that note, we post again tomorrow....
I left you last night and you were ok....I am so glad ...Daddy called me last night to tell me all the things you were saying....you are funny when you want to be.
I called and you were fast asleep by 9:30 pm and you slept until 8:30 am and you did not wake.
Your counts today :
WBC - o.1
RBC - 95
PLT - 17 so another transfusion scheduled for this morning...
I called you to see how you were doing and you seemed to sound a little down, probably all the medication.
I talked to your nurse today and we have dropped your morphine level from 1.22 to 1.0.
I asked her about the 0.1 white count and she told me it is the same as > 0.1 really....
she said that she knows we are anxious at this point but it is still early yet..so we continue to wait for your counts to rise.
Daddy tells me you are eating Froot loops and drinking... wonderful news and that they ran your liver counts again and they are down...everything seems to be on track Ryan.
I will be back at the hospital tomorrow to see you ....Keep up the great work sweetheart...we are all fighting right beside you ....Ally has done her job and now your body needs to let it work..
Ally and I went to the mall today to run soon erands and get you your Auntie Nicole a birthday gift and we stopped into say hello to our friend Leanne and we ended up staying for lunch....Thanks Leanne....it was fun....we then were heading home and decided to take a detour to Tim's to pick up coffee for Sherry and Steve..Happy Birthday Steve....
We were invited to Nicole's today to celebrate Chris's birthday but unfortunatley we could not make it as it is Auntie Nicole's birthday as well..Chris, Ryan says happy Birthday ....
Wow..February 22nd is a busy day for alot of people we know...
Happy Birthday to you all ....Enjoy.....Ryan can't wait to see you all ...hopefully it will be soon
On that note, we post again tomorrow....
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